"Early morning of May 6, 2015 I had my first seizure. I’ve been suffering for the past three and half years with epilepsy. It has affected my life drastically in many ways. For the first 14 months of my diagnosis, I was constantly in hospitals because of all the side effects I was having due to the medication. I was losing my vision, voice and hearing. After many different diagnosis from various doctors I was flown to CHEO in Ottawa in June 2016. Once admitted the neurologist spoke with my parents and we decided to drop all my medications within the first day of being there and all the side effects stopped, as well as the seizures. Too much medication doesn’t always cure things, as I saw it. For a year after, I had a few “withdrawal seizures” but I have been good since.
This diagnosis definitely changed my life for the bad at first, but now I have learnt to live with this illness. Perseverance and determination has not stop me from achieving my dreams and goals. I believe that epilepsy definitely made me the person I am today and I am proud of who I have become. As my parents would say, I am a young, determined and stubborn child that has never given up through all the ups and downs that I have been through.
My family has been very supportive through all the issues I endured. I don’t know what I would have done without the help and support of my mom. As my dad was working, I was thankful to have my mom by my side every second. She was my voice and eyes for many days. She spent every night with me in the hospitals. Over time, I came to realize who was always there for me by my side and who wasn’t. During this difficult time I got to know who stood by me to support me through visits, calls or simple texts.
The hardest thing for me throughout this whole diagnosis was not being able to attend my high school grade 11 and 12. I was home schooled by my mom because I didn’t know when the next episode was going to happen. In the matter of one day, my whole life changed forever. From being able to sit outside and watch the thunderstorms with my dad, to being able to watch fireworks, or going to concerts and now all of a sudden I can’t do this anymore. After having epilepsy for over three years, I have gotten used to what I can and can’t do anymore. I will always adapt to what life has to through my way from this day onward."